tag:blogger.com,1999:blog-2993037802833943538.post1691726606010978396..comments2012-02-11T06:33:12.176-06:00Jenhttp://www.blogger.com/profile/01169013236451607972noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-2993037802833943538.post-73119094665986000072012-02-11T06:33:12.176-06:002012-02-11T06:33:12.176-06:00Hi there ! Thank you for sharing your story and emotions. My parter and I have just discovered that our baby is effected of CDH. <br /><br />I would like to believe that my baby will survive like Sofia did.<br /><br />I will keep you updated.<br /><br />Ruggero<br /><br />London UKAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-73877321505658999962008-02-18T09:12:00.000-06:002008-02-18T09:12:00.000-06:00Jennifer:<BR/><BR/>Lori Nelson forwarded me a link to your site. Your family will continue to be in my thoughts and prayers. I am at Children's Mercy and if there is ANYTHING I can do for you during your stay, please don't hesitate to contact me.<BR/><BR/>With warm wishes,<BR/><BR/>Amy Leonard<BR/>CMH direct extension - 816-346-1350<BR/>alleonard@cmh.eduAmynoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-12261447649809153992008-02-15T23:48:00.000-06:002008-02-15T23:48:00.000-06:00Jennifer and Kenny - I just came across your blog through Aimee and can't stop reading it. You have amazing strength and such a positive outlook. You are all in our thoughts and prayers. We wish you the very best!<BR/>Abby and Andy WilhiteAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-39799506987832539622008-02-08T18:44:00.000-06:002008-02-08T18:44:00.000-06:00Wow Jen, That really helped me understand the circumstances. All that knowlege will really help you. I pray for you everyday. I feel baby miller is going to do great things in the future. Love ASh and ChadAshleynoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-1214610269817189772008-02-06T23:59:00.000-06:002008-02-06T23:59:00.000-06:00Congrats on the baby! I came to your blog thru Claire's (another CDH baby). I'm hoping your sweet baby arrives with as few complications as possible.<BR/><BR/>Do you know if the baby is a boy or girl? Do you have any names picked out?The Nannyhttp://www.blogger.com/profile/09840319949362558089noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-29154265888384310292008-02-05T23:20:00.000-06:002008-02-05T23:20:00.000-06:00Hi Jennifer,<BR/><BR/>I'm another Jenn Miller with a CDH baby, I wonder what else we have in common?! <BR/><BR/>My daughter is a crazy toddler now who despite having little function in her left lung and a feeding tube, you'd never know she wasn't a "normal" (whatever that is!) kiddo! My blog chronicles our entire journey from diagnosis in Dec 05 to now. Reading your update here takes me back to those early days. You are clearly working hard to understand and prepare for the road ahead, your baby will benefit greatly from this and more-so from the great love pouring from your words. <BR/><BR/>I wish you the best and offer my ear if you need to vent and my experience if you have questions. <BR/>Sincerely,<BR/>Jenn Miller<BR/>http://jennmillerblog.spaces.live.comJenn Mhttp://www.blogger.com/profile/02440707768684898506noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-43515032068110086122008-02-05T20:51:00.000-06:002008-02-05T20:51:00.000-06:00Jennifer,<BR/>I felt like I was reading our CarePage when I read your entries. It sounds like you guys have done a lot of research which is great. I just wanted to tell you that no matter what you should always have hope. My baby, Jack, was missing 90% of his left diaphragm, was on ECMO for 10 days, went to surgery on ECMO and as of now (5 months old) is home, breathing room air and eating without the use of a tube. All babies are different but they didn't think Jack would make it and he's proof that these babies are strong. I will keep you in my prayers and check your blog for updates. Our carepage is www.carepages.com and CarePage name = JackJensen if you want to read it. It goes from diagnosis at 19 weeks until today.<BR/>Vicki<BR/>mom to Jack, CDH & ECMO survivor!Vicki Jensenhttp://www.blogger.com/profile/09242718826670849899noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-26044196486245707812008-02-05T20:08:00.000-06:002008-02-05T20:08:00.000-06:00Hi Jennifer!<BR/><BR/>Wow, that's quite an update! :) I am keeping you in my prayers. Please let me know if I or CHERUBS can help in any way or if you need to talk or have any questions about CDH.<BR/><BR/>Dawn<BR/>President, CHERUBS<BR/>http://www.cdhsupport.orgCongenital Diaphragmatic Hernia Awareness Research and Support at CHERUBShttp://www.blogger.com/profile/06168604688370795410noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-84095326195832059832008-02-03T19:48:00.000-06:002008-02-03T19:48:00.000-06:00Jen<BR/>I only knew you were expecting by you xmas card and then to hear all of this....wow! It must be a really trying time for you and your family. But as everyone less has said he/she could not have been gieven any better parents than the 2 of you. I wish you the best and will be watching the blog for more updates.<BR/><BR/>PS I miss you all at Menorah!sng2mihttp://www.blogger.com/profile/03696591672954692853noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-24943704054587304812008-02-03T14:05:00.000-06:002008-02-03T14:05:00.000-06:00Jen,<BR/><BR/>I hope all goes well in the upcoming months. Thanks for the blog. It really is a nice way to keep everyone updated. <BR/>I miss everyone (well most everyone) at Menorah. But I especially miss us talking about our pups and Photoshop!<BR/><BR/>Take care <BR/>CarlyCarly Ynoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-61389924767172133842008-02-03T13:36:00.000-06:002008-02-03T13:36:00.000-06:00Kenny and Jennifer,<BR/><BR/>You truly are two wonderful people, and while I can't imagine what you two must be going through, I also can't imagine any baby luckier than to have the two of you as parents. Thanks for sharing this, and know that you have the support and love of friends, family and co-workers. Let Steven and I know if we can help in any way.Michaelhttp://www.blogger.com/profile/06001894362350696937noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-90472178175731140152008-02-03T05:10:00.000-06:002008-02-03T05:10:00.000-06:00Hi Jennifer,<BR/>I also have a Cdh baby. She was born on 13/10/07. She is still in hospital as we speak. She did have alot of other problems though. Its a tough road but these Kids are so tough. My thoughts are with you and your family as you begin your journey.<BR/><BR/>KristyKristy Bowling CDH Babyhttp://www.blogger.com/profile/15339719728586688302noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-64197745612623018672008-02-02T14:07:00.000-06:002008-02-02T14:07:00.000-06:00Hi Jennifer! I saw your post on BOH and thought I would visit your blog. Our little girl was born 1-18-08 and is doing very well. We were from Wichita and were originally sent up to KC for our perinatologist appts, etc. I understand completely the issue with Children's Mercy not delivering. Because my husband's company had an office in Omaha and Omaha Children's is quite skilled with CDH we opted to relocate there. One of our neonatologist got his CDH skills and training at Children's Mercy in KC. You did a great job explaining everything to your friends and family. Even after Liviana arrived I still am not sure some of our family members really understand how serious it all is. <BR/><BR/>I will be following your progress and I wish you the very best. Here is a link to our blog also:<BR/>http://livianasjourney.blogspot.com<BR/><BR/>AmyAmy AKA "Baba"http://www.blogger.com/profile/15496913107972434362noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-10156016376337189232008-02-01T09:07:00.000-06:002008-02-01T09:07:00.000-06:00Hey, Anastasia!<BR/><BR/>What a lucky baby to have the two of you for parents. I know this is a very difficult time for both of you, but we are all praying for you and the baby. I think of you everyday and miss working with you, having StarB's, and laughing at EVERYTHING! I'll be on the lookout for some of those decadent chocolate cupcakes for you! I know they're probably a no-no right now, but maybe you could indulge a little! Can't wait to see you week after next. <BR/><BR/>Love you,<BR/>Dolores D.Darcy D.noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-83152621164390223222008-01-31T19:50:00.000-06:002008-01-31T19:50:00.000-06:00My thoughts have been you both since I learned of your news. I am filled with hope for your family. The love you have for your child is obvious by the way you have taken the time to research and plan for this condition. I was curious about when you get to bring the baby home. You mentioned that the baby would come home on oxygen preventing use of day care. What is the projected time span for that? Would it be indefinite?kate's sister (kristen)noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-42258146532188620262008-01-31T01:31:00.000-06:002008-01-31T01:31:00.000-06:00Jennifer and Kenny,<BR/><BR/>We are praying for you during your pregnancy. It was great to hear that the reports have been getting better. Thank you for putting this blog together. If there is anything we can do please let us know.<BR/>Love,<BR/>Christina and GilbertGilberthttp://www.blogger.com/profile/18170457280613912844noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-50906249268673453152008-01-30T10:43:00.000-06:002008-01-30T10:43:00.000-06:00Kenny & Jennifer<BR/>Our prayers are with you. Let Amanda and I know of anything we can do for you. I now know more of what is going on, this site is a good idea. Love Scott & AmandaSCOTThttp://www.blogger.com/profile/05471634221079274862noreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-32274980018304777972008-01-29T14:33:00.000-06:002008-01-29T14:33:00.000-06:00Thank you for sharing this information with us...I'm sure it is much easier to blog rather than tell everyone over and over. I know you both are strong people and I just want you to know that Amanda and I will keep you in our prayers. Please let us know if you need anything.Andrewnoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-23511573290027449362008-01-29T11:22:00.000-06:002008-01-29T11:22:00.000-06:00Jennifer & Kenny, <BR/> Baby Miller is one very lucky baby, to have parents like the two of you. So much love!!!!!!! Take care of yourselves. This site is such a wonderful idea, it will help all of us to understand and keep up to date with what is going on with Baby Miller. The three of you are in my thoughts and prayers. I can't wait to be a Great Aunt !!!!<BR/> Love GailGailnoreply@blogger.comtag:blogger.com,1999:blog-2993037802833943538.post-55710551241307507352008-01-27T02:49:00.000-06:002008-01-27T02:49:00.000-06:00First of all (typing through tears streaming down my face), I want to say that you two are amazing and beautiful people. I found myself celebrating each time I read good news...you are so strong. I am blessed to know you. If you need anything at all....I am here!kellyhighnoreply@blogger.com