I didn't want to jinx it, so I didn't write anything about it until this post. And I was still afraid to say we were done with the NG forever, in this post. But now I can say, without a doubt, Sofie has been done with the NG tube for a LONG time, and it's not EVER coming back!!!!
Peetie Unplugged was a massive success. Because of this, 2009 was a much better year for us. 2008 included 3 months in the NICU, 3 major CDH repair surgeries, an oral aversion that spiraled out of control, and countless tube feedings. 2009 was about getting back to normal and having fun again.
Sofie has now spent more of her life being a normal kid, free from tubes and wires, and monitors than being that sick baby hooked up and held back. I'm excited to see what 2010 brings for her!!
7 comments:
Congrats on a great year!! She looks beautiful and happy. Well done! Best wishes for 2010.
Way to go Sofie!
Way to go!!! Great progress in such little time!! What a change from those two pics!
This brought tears to my eyes...so awesome!! Im so hapy fr her and your family. I tried to google peeties unplugged...Id never heard of it and was wanting to know more. Is it just a program in your area only? Sorry to bug you, we are just leaning towards a major breakthrough being the only way food will begin over here. He does NOTHING by mouth, all gtube. Anyways, congrats for a full year and no more ng tube!!! ((hugs))
I have tears in my eyes reading this post. I know what a difficult journey it's been for you guys and CONGRATULATIONS for all of your hard work paying off. I really think you are on to something, Jen, as your ideas really helped get Carter "unplugged" too. I look forward to seeing what fun 2010 brings to your family :)
Here is to a wonderful year filled with even better memories and worry-free days!! WTG Sofie!
HUGS,
Joanna
Like others who commented, this post brought tears to my eyes. I have a 3-month-old survivor of CDH and she is driving my husband and I crazy with her oral aversion and reflux. She's only taking food through her NG tube right now and seeing your precious Sofie free of any tubes reassured me that eventually things will get better!
You can check out my baby's CDH blog here: www.so-koi.com/baby. I'm going to post a link to your blog on mine; I've just discovered your blog and already find it to be such a resource of information and hope!
Congrats on all of your hard work!
Post a Comment