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1 day ago
2.28.2009
2.27.2009
Prayers for an Angel
Joseph Carter DeJohn passed away yesterday after 23 very hard fought days. Please keep Sky & Carla in your prayers.
2.26.2009
CDH Awareness Blood Drive
I've been working on putting together a blood drive with Kinley's mom. We wanted to have it on CDH Awareness Day, which is March 31st, but that day was already booked. So we're having it a bit early on Thursday, March 19th. As soon as all the specifics are ironed out, I'll be calling on Team Sofie to come out and donate again! We really appreciated all your donations in Sofie's honor last year and hope to do even better this year.
2.25.2009
Sofie's Crawling!!
Sofie's been thisclose to crawling for about a month now, and she finally did it last Saturday (2.21 - 11 1/2 months old). She's everywhere now, and fast too. And she's so unimpressed by it! She just doesn't see what all the excitement is about. ;-) She's also trying to pull up already and pulls up to a tall kneel easily. I think it won't be too long until she's standing and cruising.
Dr. Y. really nailed it on the time she'd start to crawl. I asked him a couple of months ago when he thought she'd do it. He asked when she started sitting really solidly on her own without falling over at all. That was when she was about 8 1/2 months months old. He said she'd crawl 3 months from that time. And guess what, she crawled at 11 1/2 months. Is this guy good or what? Check out this video of her progression this month...
Dr. Y. really nailed it on the time she'd start to crawl. I asked him a couple of months ago when he thought she'd do it. He asked when she started sitting really solidly on her own without falling over at all. That was when she was about 8 1/2 months months old. He said she'd crawl 3 months from that time. And guess what, she crawled at 11 1/2 months. Is this guy good or what? Check out this video of her progression this month...
2.24.2009
Where Have We Been?
We've had such a busy couple of weeks. For Valentine's Day we had some friends over for a big fondue dinner. It was so good!! Sofie took part as well, but wasn't too into eating anything. We had a great time, Kristi and Ryan - we have to do it again soon!
Feeding is going really well. Sofie's eating 26-28 ounces per day on average. Her current record sits at 29 1/2 oz. She takes 4-5 ounces at each feeding and eats 7 times per day. She still eats best when she's half asleep, but as long as she's eating we don't care how she does it.
We've been working on solids since she was just a little over 6 months old and it's a SLOW process. She sits at the table for at least two meals every day, three if we can squeeze it in. This is so she can get used to "meal times" and see us eat too. We always keep her meal times happy, playful experiences. She's still on pureed food, but will let me feed her some things like bits of steamed veggies and puffs. She doesn't feed herself though. As far as how much she eats, it's really hit or miss. Sometimes she gobbles down 2-3 servings of food (1 ounce or 2 tablespoons = 1 serving at our house) and other times she closes the gate and that's that. I can pretty much always count on getting her to eat fruit, but veggies and grains are a tougher sell.
I've been working on offering her a cup since she was around 7 months old. We have EVERY cup known to man. I think the best one is a cup we got from Sofie's OT at CMH. It's clear and has a lip like a tumbler. The flow of liquid is controlled by uncovering 1-3 holes in the lip of the cup. She doesn't actually have to create a seal to get liquid out (i.e. it will spill if you turn it upside down). This way she can get the idea of what's supposed to happen when she puts the cup to her mouth and she can see that there's liquid in it. She doesn't drink from it, but will put it to her mouth sometimes and lick out the liquid that's in the lip of the cup. It's a start!
She doesn't hold her bottle, but she could if she wanted to. She was able to do it when she was about 5 months old, but then her feeding aversion got in the way of continuing that skill. The only thing she'll do with a bottle is turn it upside down and squirt the milk out of it or shake it up.
She is starting to want to play with her cups this way too, so I'm trying to discourage that by taking them away when she does this. I give her a cup of liquid at each meal time when she's at the table and try to keep introducing it to her in a positive way. Again, we started introducing a cup 5 months ago. But she didn't respond to it appropriately then, so we put them on the shelf for a while, trying again every month or so. Now we are consistently putting a cup out with her meals 2-3 times every day in hopes that she'll pick up the pace on the cup drinking so we can start phasing out the bottle. We won't be saying good-bye to the bottle any time soon.
Sofie's weight gain has been fantastic this month. She weighed 16-0 on Wednesday of last week and 16-6 on Saturday. Yep, that's a 6 ounce gain in 3 days! She's gotten a lot more mobile the last few days so we may slow the pace a little with weight gain for a while.
My mom came to visit on Thursday and stayed until Friday afternoon to watch Sofie and help me out around the house. I've been working on a major organizing/cleaning project that's needed to be done for over a year (well, 5 years really - but it's gotten WAY out of control this last year). It's really close to being done now, and I couldn't have gotten this far without her help last week. Thanks Mom!! I've also been starting to baby proof the house so our little mover doesn't get into anything she shouldn't. I swear this girl has an affinity for outlets and tables that pull over.
We saw Dr. Y. again on Friday for Sofie's 4th RSV shot. The Synagis dosage is based on weight and she's been riding the line each time for needing two shots to get her full dose. This time she was above the cutoff, so she had to get two shots. She's over it in about 10 seconds though. The nurse gave her a sticker, which she thought was pretty cool. She held onto it for the longest time until we were in the car and driving down the road.
Dr. Y. made a few changes to her plan of care. He wrote the order to discontinue all NG feeding supplies - no more tubes, syringes, feeding pump, IV pole, etc. Apria also came to pick up the remainder of our respiratory equipment last week - no more portable oxygen tanks for backup and no more apnea monitor! She's wire-free when she sleeps now at almost one year of age. I'm going to box up our extra supplies that weren't returnable and store them in the basement for a while "just in case". This is more for superstitious reasons that anything else. So all we're getting from Apria now is her formula and thickener.
Which brings us to the next change...after Sofie's first birthday she's switching from Enfamil Lipil to Pediasure and whole milk. The Pediasure is thick and we'll mix it with the whole milk, so that means we don't have to mess with the thickener anymore, which is great because insurance doesn't cover it and it's $125/box. Each box lasts a little over a month. So that will save us a lot of money. Right now, insurance covers her formula. Believe it or not, we've never had to buy a single can of formula. I'm hoping insurance may also cover the Pediasure. We'll see? So with that switch, the only thing we'll be getting from Apria is the Pediasure. If insurance doesn't cover it, we won't be needing Apria anymore either. Slowly but surely, we're becoming normal in this house!
Dr. Y. has completely taken over Sofie's care now. We had a Special Care Clinic appointment scheduled with Dr. R. today (Tuesday), but I cancelled it. I really wanted to go one last time to talk about why we were leaving and to let Dr. R. see how well Sofie is doing now, but Dr. Y. recommended we not go, since we would be exposing Sofie to RSV/cold/flu just by going into the building and we had already decided to discontinue going there. So we are officially done with Dr. R. and the Special Care Clinic.
She has a one-year developmental follow up with a specialist at CMH in mid March. She also has one more outpatient OT visit at the end of March, and I anticipate that will be her last one with CMH OT. I anticipate she'll have another swallow study in May, and Dr. Y. will arrange it. Sofie will continue to see her surgeon, Dr. S.P. as previously scheduled, and her next visit isn't until July.
It's nice to just be seeing Dr. Y. for regular visits and having FirstSteps therapy in our home. It's so much simpler! Her next visit with Dr. Y. is her one-year visit in March, and she'll also be getting her Synagis shots in March and April. She sees Sherry (our FirstSteps OT) and Dana (our FirstSteps dietitian) weekly on Wednesdays in our home. It's great!
Two weeks until Sofie's 1st Birthday!!
Feeding is going really well. Sofie's eating 26-28 ounces per day on average. Her current record sits at 29 1/2 oz. She takes 4-5 ounces at each feeding and eats 7 times per day. She still eats best when she's half asleep, but as long as she's eating we don't care how she does it.
We've been working on solids since she was just a little over 6 months old and it's a SLOW process. She sits at the table for at least two meals every day, three if we can squeeze it in. This is so she can get used to "meal times" and see us eat too. We always keep her meal times happy, playful experiences. She's still on pureed food, but will let me feed her some things like bits of steamed veggies and puffs. She doesn't feed herself though. As far as how much she eats, it's really hit or miss. Sometimes she gobbles down 2-3 servings of food (1 ounce or 2 tablespoons = 1 serving at our house) and other times she closes the gate and that's that. I can pretty much always count on getting her to eat fruit, but veggies and grains are a tougher sell.
I've been working on offering her a cup since she was around 7 months old. We have EVERY cup known to man. I think the best one is a cup we got from Sofie's OT at CMH. It's clear and has a lip like a tumbler. The flow of liquid is controlled by uncovering 1-3 holes in the lip of the cup. She doesn't actually have to create a seal to get liquid out (i.e. it will spill if you turn it upside down). This way she can get the idea of what's supposed to happen when she puts the cup to her mouth and she can see that there's liquid in it. She doesn't drink from it, but will put it to her mouth sometimes and lick out the liquid that's in the lip of the cup. It's a start!
She doesn't hold her bottle, but she could if she wanted to. She was able to do it when she was about 5 months old, but then her feeding aversion got in the way of continuing that skill. The only thing she'll do with a bottle is turn it upside down and squirt the milk out of it or shake it up.
She is starting to want to play with her cups this way too, so I'm trying to discourage that by taking them away when she does this. I give her a cup of liquid at each meal time when she's at the table and try to keep introducing it to her in a positive way. Again, we started introducing a cup 5 months ago. But she didn't respond to it appropriately then, so we put them on the shelf for a while, trying again every month or so. Now we are consistently putting a cup out with her meals 2-3 times every day in hopes that she'll pick up the pace on the cup drinking so we can start phasing out the bottle. We won't be saying good-bye to the bottle any time soon.
Sofie's weight gain has been fantastic this month. She weighed 16-0 on Wednesday of last week and 16-6 on Saturday. Yep, that's a 6 ounce gain in 3 days! She's gotten a lot more mobile the last few days so we may slow the pace a little with weight gain for a while.
My mom came to visit on Thursday and stayed until Friday afternoon to watch Sofie and help me out around the house. I've been working on a major organizing/cleaning project that's needed to be done for over a year (well, 5 years really - but it's gotten WAY out of control this last year). It's really close to being done now, and I couldn't have gotten this far without her help last week. Thanks Mom!! I've also been starting to baby proof the house so our little mover doesn't get into anything she shouldn't. I swear this girl has an affinity for outlets and tables that pull over.
We saw Dr. Y. again on Friday for Sofie's 4th RSV shot. The Synagis dosage is based on weight and she's been riding the line each time for needing two shots to get her full dose. This time she was above the cutoff, so she had to get two shots. She's over it in about 10 seconds though. The nurse gave her a sticker, which she thought was pretty cool. She held onto it for the longest time until we were in the car and driving down the road.
Dr. Y. made a few changes to her plan of care. He wrote the order to discontinue all NG feeding supplies - no more tubes, syringes, feeding pump, IV pole, etc. Apria also came to pick up the remainder of our respiratory equipment last week - no more portable oxygen tanks for backup and no more apnea monitor! She's wire-free when she sleeps now at almost one year of age. I'm going to box up our extra supplies that weren't returnable and store them in the basement for a while "just in case". This is more for superstitious reasons that anything else. So all we're getting from Apria now is her formula and thickener.
Which brings us to the next change...after Sofie's first birthday she's switching from Enfamil Lipil to Pediasure and whole milk. The Pediasure is thick and we'll mix it with the whole milk, so that means we don't have to mess with the thickener anymore, which is great because insurance doesn't cover it and it's $125/box. Each box lasts a little over a month. So that will save us a lot of money. Right now, insurance covers her formula. Believe it or not, we've never had to buy a single can of formula. I'm hoping insurance may also cover the Pediasure. We'll see? So with that switch, the only thing we'll be getting from Apria is the Pediasure. If insurance doesn't cover it, we won't be needing Apria anymore either. Slowly but surely, we're becoming normal in this house!
Dr. Y. has completely taken over Sofie's care now. We had a Special Care Clinic appointment scheduled with Dr. R. today (Tuesday), but I cancelled it. I really wanted to go one last time to talk about why we were leaving and to let Dr. R. see how well Sofie is doing now, but Dr. Y. recommended we not go, since we would be exposing Sofie to RSV/cold/flu just by going into the building and we had already decided to discontinue going there. So we are officially done with Dr. R. and the Special Care Clinic.
She has a one-year developmental follow up with a specialist at CMH in mid March. She also has one more outpatient OT visit at the end of March, and I anticipate that will be her last one with CMH OT. I anticipate she'll have another swallow study in May, and Dr. Y. will arrange it. Sofie will continue to see her surgeon, Dr. S.P. as previously scheduled, and her next visit isn't until July.
It's nice to just be seeing Dr. Y. for regular visits and having FirstSteps therapy in our home. It's so much simpler! Her next visit with Dr. Y. is her one-year visit in March, and she'll also be getting her Synagis shots in March and April. She sees Sherry (our FirstSteps OT) and Dana (our FirstSteps dietitian) weekly on Wednesdays in our home. It's great!
Two weeks until Sofie's 1st Birthday!!
2.19.2009
2.12.2009
Blog Slacker
Oh wow, I'm such a blog slacker these days! We had Sofie's baptism last Saturday and it went really well. Afterward we had a big family dinner at our house. It was a really special day for us. I haven't uploaded any of the pictures yet (so I haven't even seen them!), but once I get to it I'll post some here. After the flurry of party planning last week, we've just kind of been hanging out and getting back into our routine this week.
Sofie starting teething in a serious way last week. Her two front teeth popped in last Wednesday, the 4th. She had an appointment with Dr. Y. the following day and he showed me that the teeth on either side of her front and bottom two teeth (how confusing is that wording?) are also about to pop through. Ouch! Poor baby is working on SIX teeth right now! So last week wasn't the best of feeding weeks. But a "poor" feeding day meant 23 ounces, still not too bad. And she's holding her weight around 15 lbs, 12 oz. The day of her baptism, despite all the activity, she matched her record intake and took 28 1/2 ounces for the day. Plus she did awesome with her solids, and even let Grandpa Steve feed her a 2nd helping of peaches at dinner. **More on her latest visit with Dr. Y. in a future post. **
For still being a "non-crawler" she is very mobile. This girl can get absolutely anywhere she wants to. As of last week, she's really good at getting up onto her hands and knees by pushing up from her tummy. She still struggles a little with how to get over her legs and down to that position from sitting, but somehow always finds a way to get to what she wants. She can also go from her tummy to sitting fairly easily. When she pushes up into the crawling position she rocks back and forth, like "Ugh! Legs, why won't you go!?" She's so close!
On Wednesday of this week we had a meeting with Sofie's FirstSteps team to look at her goals from the last 6 months and if she had met them. From there we set new goals to meet over the next 6 months. At this point she has pretty much met all of the goals we set for her back in the summer. I remember at the time, those goals seemed so lofty to me and now I'm amazed that we could check them all off. Way to go, Sofie! And way to go Sherry and Dana! They really know their stuff.
We got some new equipment at the FirstSteps meeting to help with Sofie's mobility. She had outgrown her first pair of Hip Helpers, so she got a new pair of those, which help SO MUCH with positioning and strengthening. I wish I had just sprung for a new pair a long time ago. We also got some arm stablizers to help her stay in the crawling position for longer to strengthen her muscles and some teeny tiny weights to use during certain exercises with her legs. Don't worry, she's not quite pumping iron yet. They are 1/2 lb weights! Some day I'll post pictures of these fancy new toys.
Today Sofie and I had a nice girls' day out with some friends. We had a nice lunch and did some shopping. (But not too much - Kenny, Markus, and Chris). It was so nice to be out and about like normal people. I have serious Spring Fever and these nice days are such a tease!
Today also marked 1 MONTH OF BEING NG TUBE FREE!!!!!!! Yay for Peetie Unplugged!!
Sofie starting teething in a serious way last week. Her two front teeth popped in last Wednesday, the 4th. She had an appointment with Dr. Y. the following day and he showed me that the teeth on either side of her front and bottom two teeth (how confusing is that wording?) are also about to pop through. Ouch! Poor baby is working on SIX teeth right now! So last week wasn't the best of feeding weeks. But a "poor" feeding day meant 23 ounces, still not too bad. And she's holding her weight around 15 lbs, 12 oz. The day of her baptism, despite all the activity, she matched her record intake and took 28 1/2 ounces for the day. Plus she did awesome with her solids, and even let Grandpa Steve feed her a 2nd helping of peaches at dinner. **More on her latest visit with Dr. Y. in a future post. **
For still being a "non-crawler" she is very mobile. This girl can get absolutely anywhere she wants to. As of last week, she's really good at getting up onto her hands and knees by pushing up from her tummy. She still struggles a little with how to get over her legs and down to that position from sitting, but somehow always finds a way to get to what she wants. She can also go from her tummy to sitting fairly easily. When she pushes up into the crawling position she rocks back and forth, like "Ugh! Legs, why won't you go!?" She's so close!
On Wednesday of this week we had a meeting with Sofie's FirstSteps team to look at her goals from the last 6 months and if she had met them. From there we set new goals to meet over the next 6 months. At this point she has pretty much met all of the goals we set for her back in the summer. I remember at the time, those goals seemed so lofty to me and now I'm amazed that we could check them all off. Way to go, Sofie! And way to go Sherry and Dana! They really know their stuff.
We got some new equipment at the FirstSteps meeting to help with Sofie's mobility. She had outgrown her first pair of Hip Helpers, so she got a new pair of those, which help SO MUCH with positioning and strengthening. I wish I had just sprung for a new pair a long time ago. We also got some arm stablizers to help her stay in the crawling position for longer to strengthen her muscles and some teeny tiny weights to use during certain exercises with her legs. Don't worry, she's not quite pumping iron yet. They are 1/2 lb weights! Some day I'll post pictures of these fancy new toys.
Today Sofie and I had a nice girls' day out with some friends. We had a nice lunch and did some shopping. (But not too much - Kenny, Markus, and Chris). It was so nice to be out and about like normal people. I have serious Spring Fever and these nice days are such a tease!
Today also marked 1 MONTH OF BEING NG TUBE FREE!!!!!!! Yay for Peetie Unplugged!!
2.03.2009
Eventful Week for CDH Families
We're always following the stories of Sofie's CDH allies, but this past week has been especially eventful within our little CDH community...
First off...a very BIG CONGRATULATIONS to Carter, Kellie, Brad (and Lucy)! Carter came home over the weekend after 115 very long days at Duke and is doing great. We're so happy for you guys!
Also celebrating her homecoming was little Alina from across the pond. Welcome home sweet girl!
Ava had her long awaited surgery last week to correct her bowel obstruction that resulted from a diaphragmatic hernia recurrence back in October. It's been a rough road for her and her family the last few months and we're so happy to finally see her on the mend!
Olivia has been fighting her way through the CDH battle since she and her twin brother, Mason, were born in November. She's scheduled for surgery tomorrow morning to have a fundoplication and g-tube placement. She's currently working on feeding and is getting very close to being able to go home. She's such a strong little girl. Hang in there Jacy and Doug, you'll be home with your babies very soon!
Sydney was born in November and was so close to going home this month. Unfortunately she had a bit of setback and had to go back on the vent for a few days, but was able to come off the vent last week. Hopefully she'll be able to go home very soon.
Sky and Carla welcomed their new baby boy, Joseph, early this morning. Joseph is currently on ECMO so his heart and lungs can rest for the big fight ahead.
Davis arrived January 30th at Duke (Carter's old stomping ground). He has danced around the possibility of going on ECMO a few times - these babies like to keep everyone on their toes! Thankfully he's remained stable enough to avoid ECMO so far. His medical team is currently working to try to wean his meds and vent settings to see if he's ready for his repair surgery.
Babies on the way...
Maxton will make his debut in about 5 weeks.
Kaden is due April 17th.
Kamryn and her twin sister Brooke are due in June. Their family just received the news of Kamryn's CDH diagnosis within the last month. Kamryn was diagnosed at 13 weeks gestation with CDH and Brooke appears to be very healthy. They are currently 17 weeks gestation, and I'm just getting to know them through their blog. I added it to our list below if you'd like to follow their story.
Please keep all of these families and all other CDH families in your thoughts and prayers. Each day five families in the U.S. alone get the news that their baby has CDH. The last research I read stated that 49% of CDH cases are still undiagnosed until birth. We only have the privilege of getting to know a handful of these families, yet there are many more out there going through the same thing. Please say a quick prayer for all of them today...
First off...a very BIG CONGRATULATIONS to Carter, Kellie, Brad (and Lucy)! Carter came home over the weekend after 115 very long days at Duke and is doing great. We're so happy for you guys!
Also celebrating her homecoming was little Alina from across the pond. Welcome home sweet girl!
Ava had her long awaited surgery last week to correct her bowel obstruction that resulted from a diaphragmatic hernia recurrence back in October. It's been a rough road for her and her family the last few months and we're so happy to finally see her on the mend!
Olivia has been fighting her way through the CDH battle since she and her twin brother, Mason, were born in November. She's scheduled for surgery tomorrow morning to have a fundoplication and g-tube placement. She's currently working on feeding and is getting very close to being able to go home. She's such a strong little girl. Hang in there Jacy and Doug, you'll be home with your babies very soon!
Sydney was born in November and was so close to going home this month. Unfortunately she had a bit of setback and had to go back on the vent for a few days, but was able to come off the vent last week. Hopefully she'll be able to go home very soon.
Sky and Carla welcomed their new baby boy, Joseph, early this morning. Joseph is currently on ECMO so his heart and lungs can rest for the big fight ahead.
Davis arrived January 30th at Duke (Carter's old stomping ground). He has danced around the possibility of going on ECMO a few times - these babies like to keep everyone on their toes! Thankfully he's remained stable enough to avoid ECMO so far. His medical team is currently working to try to wean his meds and vent settings to see if he's ready for his repair surgery.
Babies on the way...
Maxton will make his debut in about 5 weeks.
Kaden is due April 17th.
Kamryn and her twin sister Brooke are due in June. Their family just received the news of Kamryn's CDH diagnosis within the last month. Kamryn was diagnosed at 13 weeks gestation with CDH and Brooke appears to be very healthy. They are currently 17 weeks gestation, and I'm just getting to know them through their blog. I added it to our list below if you'd like to follow their story.
Please keep all of these families and all other CDH families in your thoughts and prayers. Each day five families in the U.S. alone get the news that their baby has CDH. The last research I read stated that 49% of CDH cases are still undiagnosed until birth. We only have the privilege of getting to know a handful of these families, yet there are many more out there going through the same thing. Please say a quick prayer for all of them today...
New Records
Well we survived last week with Kenny gone - and didn't even break any bones! It's so nice to have him back home again. Sofie missed her Daddy! As you can see by the new background, she is Daddy's Valentine. This was my first attempt at getting really creative with the background, and it didn't turn out exactly as I had planned but that's okay.
Sofie's doing so well with her feedings. Friday night she broke a new record by taking 27 1/2 ounces, but the new record didn't last long. Saturday she decided to take 28 1/2 ounces! We're so happy with that amount and feel like that is pretty much her ideal amount to eat each day. She's continuing to gain weight and is hanging out around 15 lbs, 12 oz now.
She's been a lot more willing to take a break from playing to take her bottles the last week. Whereas before, she had to be ready for a nap to really want to eat. Sunday I even fed her 4 oz during church! She was really sleepy and that's pretty much the only way she'll eat if there are any distractions nearby. And we sure did have distractions. It was a full house at 10:30 Mass and everyone was singing. It was such a great feeling to be holding her during church and feeding her just like any other normal family.
We usually attend 8:00 Mass on Sundays because not many people make it to the early Mass and we feel like it's much safer to take her with less people, and everyone is pretty spread out to minimize her exposure. She's also usually the only baby at the early Mass and sometimes even the only child there. It's hard to get out that early with little ones - especially when it's 10 degrees outside! We live very close to our church (just a couple of blocks), so it's not far to go. There are probably less than 80 people at 8:00 Mass and closer to 800 or more at 10:30 Mass (I'm guessing).
But this Sunday we attended the 10:30 Mass so we could meet up with another very nice family in our church for Sofie's baptism prep. We're so excited that Sofie will have her ceremonial baptism at our church this weekend. Sofie was already baptized within a couple hours of birth by a priest at the hospital. It was an emergency baptism, since she was born with a life threatening condition. But we still get to have the ceremony to welcome her into the church community and celebrate with our family. We also never got the chance to include her Godparents or have them take part in her baptism, so that will be a big part of the ceremony as well. We really looking forward to celebrating, especially now that she is tube free! I'll be posting pictures sometime next week.
Sofie's doing so well with her feedings. Friday night she broke a new record by taking 27 1/2 ounces, but the new record didn't last long. Saturday she decided to take 28 1/2 ounces! We're so happy with that amount and feel like that is pretty much her ideal amount to eat each day. She's continuing to gain weight and is hanging out around 15 lbs, 12 oz now.
She's been a lot more willing to take a break from playing to take her bottles the last week. Whereas before, she had to be ready for a nap to really want to eat. Sunday I even fed her 4 oz during church! She was really sleepy and that's pretty much the only way she'll eat if there are any distractions nearby. And we sure did have distractions. It was a full house at 10:30 Mass and everyone was singing. It was such a great feeling to be holding her during church and feeding her just like any other normal family.
We usually attend 8:00 Mass on Sundays because not many people make it to the early Mass and we feel like it's much safer to take her with less people, and everyone is pretty spread out to minimize her exposure. She's also usually the only baby at the early Mass and sometimes even the only child there. It's hard to get out that early with little ones - especially when it's 10 degrees outside! We live very close to our church (just a couple of blocks), so it's not far to go. There are probably less than 80 people at 8:00 Mass and closer to 800 or more at 10:30 Mass (I'm guessing).
But this Sunday we attended the 10:30 Mass so we could meet up with another very nice family in our church for Sofie's baptism prep. We're so excited that Sofie will have her ceremonial baptism at our church this weekend. Sofie was already baptized within a couple hours of birth by a priest at the hospital. It was an emergency baptism, since she was born with a life threatening condition. But we still get to have the ceremony to welcome her into the church community and celebrate with our family. We also never got the chance to include her Godparents or have them take part in her baptism, so that will be a big part of the ceremony as well. We really looking forward to celebrating, especially now that she is tube free! I'll be posting pictures sometime next week.
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