We're always following the stories of Sofie's CDH allies, but this past week has been especially eventful within our little CDH community...
First off...a very BIG CONGRATULATIONS to Carter, Kellie, Brad (and Lucy)! Carter came home over the weekend after 115 very long days at Duke and is doing great. We're so happy for you guys!
Also celebrating her homecoming was little Alina from across the pond. Welcome home sweet girl!
Ava had her long awaited surgery last week to correct her bowel obstruction that resulted from a diaphragmatic hernia recurrence back in October. It's been a rough road for her and her family the last few months and we're so happy to finally see her on the mend!
Olivia has been fighting her way through the CDH battle since she and her twin brother, Mason, were born in November. She's scheduled for surgery tomorrow morning to have a fundoplication and g-tube placement. She's currently working on feeding and is getting very close to being able to go home. She's such a strong little girl. Hang in there Jacy and Doug, you'll be home with your babies very soon!
Sydney was born in November and was so close to going home this month. Unfortunately she had a bit of setback and had to go back on the vent for a few days, but was able to come off the vent last week. Hopefully she'll be able to go home very soon.
Sky and Carla welcomed their new baby boy, Joseph, early this morning. Joseph is currently on ECMO so his heart and lungs can rest for the big fight ahead.
Davis arrived January 30th at Duke (Carter's old stomping ground). He has danced around the possibility of going on ECMO a few times - these babies like to keep everyone on their toes! Thankfully he's remained stable enough to avoid ECMO so far. His medical team is currently working to try to wean his meds and vent settings to see if he's ready for his repair surgery.
Babies on the way...
Maxton will make his debut in about 5 weeks.
Kaden is due April 17th.
Kamryn and her twin sister Brooke are due in June. Their family just received the news of Kamryn's CDH diagnosis within the last month. Kamryn was diagnosed at 13 weeks gestation with CDH and Brooke appears to be very healthy. They are currently 17 weeks gestation, and I'm just getting to know them through their blog. I added it to our list below if you'd like to follow their story.
Please keep all of these families and all other CDH families in your thoughts and prayers. Each day five families in the U.S. alone get the news that their baby has CDH. The last research I read stated that 49% of CDH cases are still undiagnosed until birth. We only have the privilege of getting to know a handful of these families, yet there are many more out there going through the same thing. Please say a quick prayer for all of them today...
2 days ago