I feel such a sense of accomplishment for her that we stepped up and did things our own way. We did what we truly believed was the best thing for her, and by doing so we brought her from being 100% tube fed to 100% PO fed in just 36 days. And two weeks in the middle were rocky just due to med changes. I won't say we're done with the NG forever for quite a while. I don't want to jinx it. But I can say that at this point, Peetie Unplugged has been a success!
When you're in the moment, it can seem like time and progress is really dragging and there were LOTS of frustrating days in there, but when I see that actually written here..."100% tube fed to 100% PO fed in 36 days"...it really feels phenomenal. It's such a huge victory for all of us as a family. And we couldn't have done it without the awesome support of Dana, Sherry, and Dr. Y. Thank you!!
We first started talking about weaning her NG by hunger trial late in the summer, but we wanted to get her through any potential surgery first. Kinley's mom and I talked about it quite a bit, and I can't say how much it helps to have a buddy to go through something like this with. Back in October we talked about having our girls NG free for Christmas and we weren't far off the mark. I'm so happy for you guys too - congrats Kinley on being tube free!
8 Responses:
Yea! Sofie (and you two) have done such an amazing job! Way to go!!!
CONGRATULATIONS! I am so happy for you Little Miss Sofie! Mommy and Daddy are doing a fabulous job with you! You are just growing and getting so big. Your cdh friend, Ava says. "Hello!" As always keeping you and your beautiful family in our prayers!
~Terri and Ava
Congrats! I am sure that is great to get rid of the tubes (even if the NG isn't totally permanent). I am glad you are getting your story out there for other parents to learn from. You guys know Sofie and whats best for better than anyone. And you made a plan that worked for her. Great job Sophie!
Congratulations, dear cousins! I am so happy for all of you. What an amazing hurdle Sofie has jumped over in such a short time.
Continuing good thoughts & prayers for you,
Janette
Thank you for sharing your story. Your journey has helped us in more ways than you'll ever know. It's wonderful to see that you look matters into your own hands and followed Sofie's cues and it worked! I'm sure we'll have tons of questions when we get home with our monkey. You'll have to come stay with us for a month and teach us--haha!!
jen, you sound great!! you should be so proud of the initiative you took with sofie. you are an amazing mama!! hope to see you really soon!
That's awesome! What great news!
I could not agree with you more. It is so helpful to have someone to bounce ideas off of, compare notes, or ask questions. Thanks for all your help and I am so glad we were able to help you out as well. You guys have been an inspirration for us. We are so happy for your family. It is so great to read about all of Sofie's progress.
Post a Comment