photo by Amy Price, Amy Price Photography. September 2009
Sofia is our first child. We have been married for 7 years and live in Kansas City, MO. Kenny is an architect and Jennifer is a labor & delivery RN. As a nurse in the field of obstetrics, I knew how devastating a CDH diagnosis could be, but I really knew nothing about what it would be like to be a parent of a child with CDH.
We were lucky enough to find stories of other families who are going through the same things we are. It has been through reading about the experiences of other families that we have learned so much about what it's like to have a baby with CDH. Thank you for the hope you have given us! Similarly, we hope our story will inspire others to believe in miracles.
Since Sofia's diagnosis we have continued to research CDH as much as possible. We are also involved with local, state, and national CDH awareness efforts.
We created this blog to keep family and friends updated on Sofia's latest news, share our story with other CDH families, and to raise awareness for CDH.
1 comments:
Jen,
My husband and I are currently pregnant with our first baby, Caleb. At 20 weeks he was diagnosed with CDH...we're currently 35 weeks, and preparing for the next step in this journey.
We will be delivering at Shands Hospital in Gainesville, FL... as that is the best survival rates we found in all our research. We're from Greenville, SC.. but as of this week we're living in the Gainesville area until we take our lil' guy home after his recovery.
Your webpage is more than amazing, and reading Sofia's story is very promising and encouraging. Thank you for creating this site... please feel free to email me at:
pjandstephburton@hotmail.com
Always,
P.J. and Steph Burton!
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