Sofia is our oldest child. We also have a healthy baby boy, Liam, born in January 2011. We have been married for 9 years and live in Kansas City, MO. Kenny is an architect and Jennifer is a labor and delivery RN. As a nurse in the field of obstetrics, I knew how medically devastating a CDH diagnosis could be, but I really knew nothing about what it would be like to be a parent of a child with CDH.
We have been lucky enough to find other families all over the world who are going through the same things we are. It has been through reading about the experiences of other families, and talking with them personally that we have learned so much about what it's like to have a baby with CDH. Thank you for the hope you have given us! Similarly, we hope our story will inspire others to believe in miracles.
Since Sofia's diagnosis we have continued to research CDH as much as possible. We are also involved with local, state, and national CDH awareness efforts, as well as efforts to raise money for CDH research. We hold an annual blood drive in honor of our daughter, since most CDH babies require many blood transfusions.
We created this blog to keep family and friends updated on Sofia's latest news, share our story with other CDH families, and to raise awareness for CDH.
