I want to start by thanking everybody for their thoughts and prayers. Whatever you are doing keep it up because our little girl is as good as we can hope for at this point. She is such a strong little girl.
Mom got released late yesterday morning from the hospital so she was able to spend a lot of time with Sofie yesterday. She probably overdid it because she was in a lot of pain last night. Thankfully they have Ronald McDonald Family Rooms here at the hospital so she was able to lay down last night and get some much needed rest.
Well I better get to the star of the show. While I don't think they could find room for another wire or tube on her little body and she has enough drugs going in her to make everybody on Celebrity Rehab very jealous, she is doing really good. The main problem right now is there is air leaking from her right lung that they are trying to get under control. They put a chest tube in not too long after she got here to help relieve the pressure. After several rounds of Xrays throughout the day they thought it wasn't in the best location to be getting everything so they put in another tube last night and her blood pressure numbers are the best they have been since we got here. The doctors have even said that if continues to progress at this rate that they're optimistic that we will be able to make to surgery without having to go on ECMO. Which may be the best news yet.
I think I should start leaving her alone more often because everytime I went in to see her last night they were lowering her settings on the ventilator. The Doctors told us we are on the low end of the range of settings, but it's still good to see everytime they go even lower.
The surgens were in to check on her this morning, which is good becuase the doctors told me when we got here we wouldn't see them too much untill her vitals got into a range that is safer for surgery. They told me we aren't quite there but we are getting closer.
Some of her doctors have begun a study that is trying to help babies that have to take a lot a pain killers. With babies that are on pain killers for a long period of time they begin to develop a tolerance which means the drugs levels have to continue to increase. This also means they have a harder time with withdrawls when they start to come off the drugs. So her doctors want to try a drug that has been used on adults and has been effective but hasn't been studied on babies yet to try and limit the the need to increase her pain medication levels. Our little girl is the study's first participant. So the doctors say if this works she will be legendary to a lot of babies in the future.
Well while it seems like I have been writing forever I sure I am leaving out so much. I need to go down and get Mom so I will sign off for now. Keep those prayers coming. More updates later. Hopfully from Jennifer who is better at this stuff.
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