14 hours ago
2.12.2008
Perinatologist Appointment
We had our appointment with the perinatologist this morning. All good news to report as far as growth on the ultrasound. The baby is measuring just a little over 35 weeks, so we are right on track. They estimated the baby's weight at 4lb 14oz. We are really trying to get to a point where the baby will be a little bigger for surgery. Also there is a weight minimum to even be a candidate for ECMO. I think it is around 4 1/2 lbs, so we'd like to be bigger so we have that as an option if we need it. The amniotic fluid level was normal, right in the middle range at 14.5, so that was also good news. Baby passed the biophysical profile with 8/8 and it looked like the liver was down today, so that was also very good news. I had thought that at our previous visits, they had never been able to fully visualize all the major vessels of the heart, so I asked about having a fetal echocardiogram. Apparently they did a fetal echo at one our previous appointments (this was never discussed with us), and it was normal. 70-80% of heart problems can be ruled out with a normal echo, so that was more good news. We were able to see all the major vessels of the heart coming from their appropriate places today, and even though this doesn't rule out a heart defect completely, it strongly indicates that everything is ok with the heart and vessels. So for now I am just resting (aka being really, really bored) and trying to stay pregnant as long as possible.
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5 Responses:
Just found your site this afternoon. I am the gma of a 4 mo cdh survivor(clearlyrandom.com) named Sabrina. She is thriving with no feeding tube or o2. Just want to let you know that survival is there and there is hope. I will keep you in my thoughts and prayers at this time in your lives. I pray that the MD's skills are great.
Keeping you in my thoughts. Liviana went home today after only 31 days in NICU. I will send you "stay inside baby" vibes. Wishing you the best!
Bored is good - enjoy the rest of your mind and body now - relax - you are doing everything you should and then some for this little one.
Once they arrive - shock and awe - they love to do that to the doctors and nurses (as you know).
Keeping you in my thoughts, prayers and Lung Function chants,
Elizabeth
Jen & Kenny--
You are in my thoughts and prayers. Jen, it must be driving you crazy to be on bed rest, but I am praying that you are able to relax and let the baby grow. :)
We are praying for you! Enjoy your rest, it's a lot harder when they're outside than it is when they're inside. :)
I think of your family often and have passed your story on to my church. We are all in united prayer for healing, health and peace for your family. We will pray that baby Miller stays in and "cooks" so more.
Like Amy, I will also be sending you some "stay inside baby" vibes. My daughter Claire was born with LCDH this past June at 36 weeks. She was in the hospital for 3 weeks and is doing great today.
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