3.14.2012

5th Annual CDH Awareness Blood Drive

**Know the drill already?  SIGN UP RIGHT HERE!**


Our 5th Annual CDH Awareness Blood Drive will be held on Tuesday, April 3rd, from 9:00 am - 1:30 pm, at the same location we have been at for the past three years:

Rees Masilionis Turley Architecture
908 Broadway
Kansas City, MO 64106
1st Floor Lobby


WHERE TO PARK

A huge thanks to RMT Architecture for sponsoring our drive again this year, and letting us use your awesome space. Without you guys, we couldn't make this happen!

Last year we had 29 donors and collected 30 units of blood.  That's enough to potentially help 90 people!  This year we have set our goal at 30 donors again.  Please sign up to donate and help us meet our goal, while also giving the gift of life to someone who needs it.

We're thrilled that Sofie's CDH pal, Kinley, and her family will be joining us again as cohosts. And we're so excited that this year two new families, The Bakers and The Linenbergers, will be joining the team as cohosts, as well.  Their boys, Flynn and Noah, are also CDH survivors.  Flynn was born with right-sided CDH in November of 2010, and is doing amazingly well.  I met his mom, Bonnie, when Flynn's older sister, Sparrow, was in Sofie's preschool class last year.  Tera's son, Noah, is two years old and they live here in the KC metro area.  I'm so excited we will have four families hosting this event together this year!



CDH babies like Sofie, Kinley, Flynn, and Noah often need lots of blood transfusions, and their lives depend on donors like you. Sofie and Kinley each received approximately 40-50 transfusions of blood and blood products like platelets while they were on ECMO.  And CDH babies who do not require ECMO often still need multiple blood transfusions.  They wouldn't be here if it weren't for generous people like you who volunteered to donate blood.

I know many of you have donated several times in honor of Sofie, and that means a lot to us. Thank you! If you've never donated, please consider it. The first time I donated blood was at our drive three years ago, and it was so easy! Each donation yields about one pint of blood, which can help up to three people in need of blood or blood products. Be somebody's hero!

You can sign up for our drive online. It's quick and easy...
  1. CLICK HERE to sign up.  If you haven't registered already, you will need to register before you can sign up.
  2. Click on our drive, which is listed as "Rees Masilionis Turley Architecture 1st Floor Lobby"
  3. Click the "schedule" link to the right of the time slot you want to sign up for. You will receive a confirmation once your appointment is scheduled.
If you aren't able to or prefer not to sign up online, I can sign you up. Just email me at jen@sofiascdhstory.com with the following information:
  1. Your first and last name
  2. Your email address or phone number (if you want a confirmation of your appointment and a reminder.)
  3. The time slot you prefer (1st and 2nd choices)
If the time slot you want is already full, please email me. We can make it work!

A link to this post will remain at the top of the left column until after the blood drive for easy reference. Hope to see you on April 3rd!!  Please "LIKE" this post on Facebook below to spread the word!

3.31.2011

Thank You!

Our 4th annual CDH Awareness Day blood drive was a success!  We registered 29 donors and collected 30 units of blood!  Thank you to all our donors who came out to donate in honor of Sofie, Kinley, and all babies with CDH.  We are so grateful to you!  Thanks again to Rees Masilionis Turley Architecture for making this blood drive possible each year by graciously allowing us to use the first floor of 908.  We certainly couldn't do it without you!

Sofie and Kinley had a blast playing together, and they both had baby brothers there this year supporting them, too.  Each year when I see the girls running around, giggling, and playing, I'm reminded of how blessed we all are and how far we've come in the last three years.

It was great to see lots of familiar faces and some new ones, too.  We appreciate you all giving your time to make a blood donation for those who so desperately need it!

Thank you to everyone for wearing your turquoise today and supporting CDH Awareness.  As awareness spreads, more funds are becoming available for CDH research and treatment!













3.30.2011

CDH Awareness Day 2011

I just wanted to remind everyone to wear your turquoise tomorrow in honor of Sofie and all the other brave little CDH warriors out there!!  We'll all be wearing ours proudly.  

Also, our 4th annual CDH Awareness Day blood drive is tomorrow as well.  We're looking forward to seeing everyone who comes in to donate and hopefully meeting our goal of 30 units of blood!  If you can't make it to our drive, please donate locally.

Send me a picture of yourself donating blood and/or wearing turquoise, and I'll post it here!!

2.18.2011

4th Annual CDH Awareness Day Blood Drive

Wow, I can't believe it's been four years already!  Our 4th Annual CDH Awareness Day Blood Drive will be held on Thursday, March 31st from 9:00 am - 1:00 pm at the same location we have been at the past two years:

Rees Masilionis Turley Architecture
908 Broadway
Kansas City, MO 64106
1st Floor Lobby


WHERE TO PARK

A huge thanks to RMT for hosting our drive again this year. Without you guys, we couldn't make this happen!

Last year we had 29 donors and collected 33 units of blood.  That's enough to potentially help 99 people!  Two years ago, our goal was 30 donors, and we had 41 people come to donate!! You guys are awesome!

We couldn't have done it without the help of Team Kinley, and we're excited that they'll be joining us again this year.  Both Kinley and Sofie are big sisters now, and their little brothers will be supporting them.

CDH babies like Sofie and Kinley often need lots of blood transfusions, and their lives depend on donors like you. Sofie received approximately 40-50 transfusions of blood and blood products like platelets while she was on ECMO. She wouldn't be here if it weren't for generous people who volunteered to donate blood.  

I know many of you have donated several times in honor of Sofie, and that means a lot to us. Thank you! If you've never donated, please consider it. The first time I donated blood was at our drive two years ago, and it was so easy! Each donation yields about one pint of blood, which can help up to three people in need of blood or blood products. Be somebody's hero!

You can sign up for our drive online. It's quick and easy...
  1. Log on to www.savealifenow.org If you haven't registered already, you will need to register before you can sign up.
  2. Select "Schedule an Appointment" on the right side of the screen.
  3. Find the drive by entering sponsor code "sofia".
  4. Click on our drive, which is listed as "Rees Masilionis Turley Architecture 1st Floor Lobby"
  5. Click the "schedule" link to the right of the time slot you want to sign up for. You will receive a confirmation once your appointment is scheduled.
If you aren't able or don't wish to sign up online, I can sign you up. Just email me at jen@sofiascdhstory.com with the following information:
  1. Your first and last name
  2. Your zip code
  3. Your email address or phone number
  4. The time slot you prefer (1st and 2nd choices)
Here is a LINK to the sign-up schedule, so you can see which time slots are still available. If the time slot you want is already full, please email me. We can make it work!

A link to this post will remain at the top of the left column until after the blood drive for easy reference. Hope to see you on March 31st!!

9.13.2010

Big Sister Sofie!

I recently posted a special announcement over on our family blog, OurHawksNest.  We're so happy to announce we're expecting a healthy baby in January of 2011!!  Click on the link above to read the full post.